General BDC FAQs

BDC Frequently Asked Questions

How is access granted to controlled datasets in BDC?
Access to data is controlled by the NHLBI Data Access Committee (DAC) utilizing the database of Genotypes and Phenotypes (dbGaP) permissions infrastructure....
Wed, 25 Jan, 2023 at 8:59 AM
How do I check what data I can access on BDC?
For information on how to check what data access you have on BDC and the ecosystem of platforms and services, see our documentation on this topic.
Fri, 13 Jan, 2023 at 11:39 AM
Can I see and query available data before submitting a Data Access Request?
Users can search variables, filter at the variable-value level, and build queries on datasets available on BDC using Open PIC-SURE without logging in. This ...
Fri, 15 Dec, 2023 at 1:49 PM
Do I need to change anything in my Data Access Request (DAR)?
You may need to add a new Cloud Use Statement as a component of your DAR that specifically references BDC as the environment to be used. A sample Cloud Use ...
Wed, 25 Jan, 2023 at 9:04 AM
Can someone gain access to controlled-access data without dbGaP approval?
Investigators whose principal investigator (PI) has an approved dbGaP Data Access Request (DAR) can be added as a Downloader in dbGAP. The PI must add inves...
Wed, 14 Jun, 2023 at 12:32 PM
Is the NHLBI pursuing novel methods of access to controlled-access data?
The NHLBI is pursuing data access processes and tools that could provide access to data in a more facile manner in compliance with NIH Policy and the Genomi...
Fri, 17 Jan, 2020 at 1:55 PM
What are some of the novel methods of access that NHLBI is pursuing?
Library Card/Data Passport The Library Card model is designed to streamline the process for requesting access to data by allowing an Institutional Signing...
Fri, 17 Jan, 2020 at 1:34 PM
Are IRB approval requirements and other Data Use Limitations enforced?
Because BDC uses the dbGaP permission infrastructure for controlling access to data, the same requirements for IRB approval or other Data Use Limitations ar...
Fri, 13 Jan, 2023 at 11:38 AM
If my study has special requirements to access data, will this be enforced?
Because BDC uses dbGaP permission infrastructure for controlling access to data, any additional requirements for approval (e.g., a Letter of Collaboration) ...
Fri, 13 Jan, 2023 at 11:38 AM
How is data secured in BDC?
BDC operates on Amazon Web Services (AWS) and Google Cloud Platform (GCP). Both AWS and GCP have received an Authority to Operate (ATO) from the General Ser...
Fri, 13 Jan, 2023 at 11:36 AM