Start a new topic

De-Identification Guidance

It is the responsibility of the investigator to protect participant privacy and ensure that all data is de-identified prior to upload to BDC. Investigators should evaluate whether their data needs to be de-identified and determine the best method of de-identification. 


Below are examples of de-identification methods used within other studies that may be helpful:


The DMC can also advise on strategies for de-identification and recommend data type specific tools. Investigators can either submit a ticket or submit a question on this forum to receive assistance from the DMC.


1 Comment

It is also really important to consider all of the guidance from the IRB and other local governing bodies. 

Login or Signup to post a comment